If you read my last post, you know a little about how I discovered Caleb had an allergy, and my initial steps to manage it.  I had decided that I wanted to breastfeed Caleb if at all possible, and up until 6 months, I was able to do so with no problems.  In fact, Caleb was fed breast milk exclusively.  When it came time for me to introduce solids, I was excited and eager, because Caleb wanted it, and I was ready to begin the downhill walk to less nursing.  Yay!

One evening I didn’t have any breast milk to mix with the baby cereal, so I decided to pull out a can of Enfamil that they had sent me in the mail.  I mixed it up and started feeding it to Caleb.  After about 4 bites, Caleb started pulling at his bib.  I tried to give him another scoop or two when I noticed that his mouth and chin were looking red.  We started cleaning him up right away, and we noticed that along with the redness, he had small white hives everywhere the cereal had touched, including his hands.  I cleaned him again, which seemed to help the redness, although he was really fussy.  Thinking this was just a skin reaction and he was tired, I got him ready for bed.  We put him down, but he just didn’t sound right so I got him up.  By then an hour had passed, and when I looked closer at him, I realized that his whole face, ears, and hands were swollen.  !!!!  I don’t think we noticed the swelling at first because, after all, most babies are chubby all over!  Seeing his swollen ears finally clued me in.  I felt super horrible for him, not to mention thinking how dumb I was to give him formula when I already knew that when I ate dairy it caused him problems.  Obviously, I hadn’t considered that baby formula is made with cow’s milk.  Ugh.  (Imagine me slapping my forehead here.)  We called the doctor and gave him come Children’s Benadryl.  I considered taking him into the ER, but I didn’t hear any wheezing (thank you God!), so we waited and the Benadryl seemed to work.

During Dinner

Starting to Swell

Luckily, our 6 month appointment was in a few days, so when we spoke with our doctor she recommended us to a pediatric allergist.  We saw him a few days after that.  It was so great to talk with him and finally get some solid proof for things that I only guessed at.  He first tested for beef and soy.  Beef, because it also comes from a cow, and soy, because it is another alternative for milk.  Plus, it’s another huge allergen.  Thankfully, Caleb was negative, so he tested for wheat, which also came up negative.  Yes!  Testing babies apparently isn’t done much; I think because they are so sensitive, change so quickly, and tests might not always be accurate. We made an appointment to see him again at 1 year.

Swollen Ear

From 6-12 months we didn’t have too many hiccups, other than finding out Caleb was allergic to ammoxicillin.  I pretty much fed him any fruit and veggie I could.  I waited on feeding him strawberries, but when I did, no allergic reaction.  I waited on feeding him egg, any nut, fish, and of course, dairy until after we saw the allergist again.  I started reading labels furiously, and grocery shopping took a little longer than it used to.   I also began to realize that wow, things could have been much worse.  Had Caleb been allergic to soy, I would have needed some serious help.  Soy is in so many foods, and I was already struggling with trying to make meals without dairy.  Note: I am NOT a good cook.  I also realized what a gift it was for me to be able to breastfeed Caleb from the beginning, and I am so grateful for all the support I received in order to do this successfully.  It probably saved Caleb from much worse.

At one year we went back to see our allergy doctor, and Caleb was tested for tuna, salmon, egg, and peanut.  The egg and peanut were positive reactions.  Sigh.  Having the peanut allergy didn’t surprise me, but it was definitely disappointing knowing that kids usually don’t outgrow peanut allergies.  At least I know what to do with this one, since I grew up learning all about it from my mom.  My doctor recommended that we avoid all other nuts, as well as sesame.  It occurred to me that my pediatrician had advised me at our 6 month check up to not give Caleb a flu shot (even though they normally recommend this for babies in the winter), because it may contain trace amounts of egg.  I felt very grateful, to say the least.  I found out later that the MMR shot they usually give at 15 months also may contain egg, so we are going to hold off on that one as well, at least until Caleb (hopefully) outgrows his egg allergy.

Right now, we’re just doing the best we can, which is pretty good, I think.  Here are some things that we do to keep Caleb safe and make our lives easier:

At home:

  • I pay close attention to what foods I give Caleb, especially if it’s something he hasn’t had before.  I never give him more than one new food every few days.
  • I ALWAYS double check the food labels.  Dairy and egg go by a lot of different names.  I got a great list from our allergist.  If you want to see it, let me know.
  • Also, I don’t really cook with dairy anymore.  If we want cheese on our taco, we can add it, but I never serve it that way.  I’m disappointed because I really like fettuccine, and when I tried to make it with soy milk, it really sucked.
  • I try new things (sometimes).   I’ve tried making bok choy and eggplant.  Neither went over well, but hey, I still feel good about trying something that I haven’t done before.  Plus, the more things I know Caleb CAN have, the better.  Fruits and veggies are usually safe options.
  • Controlling the environment.  Right now, Caleb can’t get in to any food, which makes it easier.  Matt or myself might have a PB sandwich every now and then, but I always clean and wash up before and after I eat (away from Caleb) to make sure no oils get wiped anywhere that could endanger him.
  • Letting people know about Caleb’s allergies.  Sometimes people want to give other kids food (not really a good idea), so it really helps everyone if people are aware of things that could potentially harm him.

At church:

  • Communicate!  I’ve told the workers about Caleb’s allergy, and I found out what they do in the nursery.  Since all they ever give kids is their own sippy cup and cheerios, the chance for Caleb to come into contact with an allergen is pretty low.  I leave Caleb’s epi pen in his bag, but I haven’t shown anyone how to use it yet.  I need to do this.
  • It helps that my church is small, so I know most of the workers, and they know me.  If it was bigger, there would be more work involved in communicating Caleb’s needs.
  • I’m also lucky that my church has a good check-in system.  Caleb’s allergies are listed on his name tag every week, so the workers can see the medical alert.
  • The older the kids get, the more I’ll have to communicate.  I’m sure other classes have better snacks than the Cheerios in the nursery, so I’ll probably just send Caleb with something specifically for him every time.

Going out:

  • We take Caleb’s epi pen with us at all times.  I  haven’t had to use it, but I would hate to get into a situation where we needed it and didn’t have it.
  • Going to restaurants is difficult.  Most menu items are off limits, because it usually has some form of dairy in it, or I just don’t know what’s baked into the bread, or what it might have been cooked in.  I usually bring Caleb’s food with us if we go.  On the occasion that I do want to give him something off the menu, I ALWAYS tell the waiter about the allergy, and then ask specifically what ____ has in it, or what it’s cooked in.  So far, we’ve given him black beans, rice, and sweet potato fries (he loves these!) from a restaurant.  It’s not much, but it’s nice to get out, and fun for him too.  I wish restaurants were more willing to share the ingredients in their food, but I understand why they don’t.

At a Friend’s House:

  • Believe it or not, this one can be tricky.  Parents give their kids snacks all the time, so I pay close attention to what the other kid is eating.  If it’s something Caleb can’t have, I watch him like a hawk.
  • When my friend threw a party, I went ahead and asked what they’d be serving for the food to see what I could give Caleb.  I felt uncomfortable doing this, but I found out what I needed to know.  I brought Caleb a little food, but I knew there were some things there he’d be able to eat.  I’ve also politely asked if the cooks wouldn’t mind if I read the food labels.  This once kept me from giving Caleb a hotdog with a milk product in it.
  • I usually feed Caleb before we go.  If he’s hungry it’s much more difficult when there’s little he can eat.
  • When I bring food, I usually try to bring a healthy option that everyone can eat.  Fruit and veggies or other single ingredient foods work the best, plus they are easy to prepare.

This was a long post, phew!  I have a bit more to say.  If you don’t have allergies or sensitivities, but want to see some things you can do to help people who do have to manage them, come back to read my next post!